Let me tell you about my friend George. He is 7 years old and he has autism. He has done really well in his couple of years at school. He has made lots of progress both in terms of his class work and his social interaction. Today George’s parents have been told there will be no ORRS (Ongoing and Reviewable Resourcing Scheme) funding for next year. They are used to knockbacks in trying to get the education that is George’s right, but this is not the Christmas present they were after.
As of this week I am now officially Labour’s Spokesperson on Special Education. I am rapt, and very happy that Trevor as lead Education Spokesperson has found room for me in the Labour education tent. I look forward to working with him and Lynne Pillay our Disabilities Spokesperson in this area, for all the Georges out there.
To make it clear for those who don’t follow this area closely, this is how the Ministry of Education define Special Education
Special education is the provision of extra help, adapted programmes, learning environments, or specialised equipment or materials to support children and young people with their learning and help them participate in education. Many children and young people have special education needs. This can include learners with learning difficulties, communication, emotional or behaviour difficulties, or intellectual, sensory or physical impairments.
I mentioned Special Education in my maiden speech as an area where I thought there was a need for a thorough re-think of the whole process including from how funding is allocated, applied for, how assessments are done, allocation between funds, follow up etc. This is a difficult area and a lot of money has been allocated in recent years, but many issues remain. I should note that the current government does have a review of Special Education underway, the public consultation part of which was meant to start this year, but will now commence in 2010.
My interest in Special Education goes back to working with students with disabilities as NZUSA President (and acutally getting some wins out of Wyatt Creech on those issues). But more recentlly it has its basis in watching two families who are my friends go through all kinds of hoops and drama just to get the education for their children that is their right under law. In both cases the parents are educated professionals and they have struggled mightily with the system. That was all before I was an MP. As an MP I have dealt with a number of cases where parents and teachers alike have had to battle and battle just to keep their kids in school.
I could go on and on, but for those with an interest feel free to get in touch. I will be in contact with individuals and groups in the New Year to begin a discussion about where people think we should be going with our policy. I want to use some new methods of policy development, including in the virtual world. In the meantime, have a read of Hilary Stace’s comments on the possible impact on the national standards on children with autism. Interesting and worrying stuff.